Changing Diabetes® in Children

Partnership Objectives

  1. Increase access to diabetes care for children with type 1 diabetes in developing countries.
  2. Educate healthcare professionals on diabetes management.
  3. Provide insulin and blood glucose monitoring equipment and supplies free of charge to children and adolescents enrolled in the program.
  4. Develop specific educational materials for the children and their families and organize education sessions and children camps to support better diabetes self-management.

Adolescent testing his blood glucose level prior to insulin treatment. Adolescent testing his blood glucose level prior to insulin treatment. Copyright Novo Nordisk

What are the health needs and challenges?

Childhood diabetes has a high mortality rate in developing/poor countries. The life expectancy for a child with newly diagnosed type 1 diabetes in sub-Saharan Africa is typically less than one year.

The International Diabetes Federation (IDF) estimates that there are 542,000 children under the age of 15 years with type 1 diabetes in the world; around half of them live in developing countries. 

For a family in a developing country, having a child diagnosed with diabetes can bring an overwhelming financial and emotional burden.

In many countries access to appropriate diabetes care, insulin and supplies can be limited and this may lead to severe handicap and early death in children with diabetes.

Urgent action is needed to improve the conditions for children with diabetes in the developing countries.

Description of partnership activities and how they address needs and challenges

The Changing Diabetes® in Children (CDiC) program is working with local partners in each country to provide care for children with type 1 diabetes and to help strengthen overall capacity.

The CDiC program was established in 2009 by Novo Nordisk as a multi-partner initiative also supported by the World Diabetes Foundation, Roche and ISPAD. Other project partners include patient organizations, key opinion leaders, health ministries and local governments.

The Changing Diabetes® in Children program has worked in partnership to establish clinics where children with diabetes can be diagnosed and receive specialised care.

The program trains healthcare professionals about diagnosis and treatment, and educates patients and families about the life of a child with diabetes.

To overcome financial hurdles, the program entails the free provision of insulin and blood glucose measuring equipment for the children, for the duration of the program.

The program builds long-term solutions for improving availability, accessibility, affordability and quality of diabetes care for children with type 1 diabetes.

Summary of impact and forward looking information

The program takes place in Cameroon, Democratic Republic of Congo, Ethiopia, Guinea, Kenya, Tanzania and Uganda. In 2016, more than 8,360 children have been registered into the programme involving 90 clinics with 3,919 trained healthcare workers. The programme includes the supply of Roche glucometers and strips, Novo Nordisks human insulin, as well as training the workers in diabetes management. 

Patient education materials have been developed in English, French, Amharic, Swahili and Spanish and are freely available on the Novo Nordisk website. A basic training manual for health care professionals on type 1 diabetes in children has been developed along with patient portrait films and they are freely available. And an electronic patient registry has been developed and distributed.

In November 2016, Novo Nordisk announced the expansion of the programme up to 2020, which entails expanding to five new countries with an ambition of reaching 20,000 children. Roche is also committed to continue its support up until 2020 in ten African countries. Read the press release here.

Videos

Changing Diabetes® in Children Ethiopia

10,000 Children's Lives Improved Through New Clinics

Partnership information

Company(ies) Novo Nordisk , Roche

Partner(s) International Society for Pediatric and Adolescent Diabetes (ISPAD), Local government & associations, Local hospitals & health centers & patient groups, World Diabetes Foundation (WDF)

Type of Partner(s) Academia / Hospitals, Government, Multilaterals, NGOs

Therapeutic Focus Non-Communicable Diseases

Disease(s) Diabetes

Program Type(s) Availability of Treatment - Differential Pricing, Availability of Treatment - Financial Support, Availability of Treatment - Product Donations, Health System Infrastructure - Development of Physical Infrastructure, Health System Infrastructure - Outreach & Medical Services, Health System Infrastructure - Training, Prevention Programs - Awareness & Outreach

Targeted Population(s) Children, Patients in needs of treatment, Youth

Region(s) East Asia & Pacific, South Asia, Sub-Saharan Africa

Number of Countries 14

Country(ies) Bangladesh, Cambodia, Cameroon, Côte d'Ivoire, Democratic Republic of the Congo, Ethiopia, Guinea, India, Kenya, Myanmar, Senegal, Sudan, Tanzania, Uganda

Start Date 2009

More information Children with diabetes Novo Nordisk

Anticipated completion date 2020