Helping Children with Juvenile Arthritis

Partnership objective

Provide valuable information for parents, teachers and caregivers about Juvenile Idiopathic Arthritis (JIA) to support youngsters affected by the condition.

In Argentina, Roche published the first guide to Juvenile Idiopathic Arthritis. In Argentina, Roche published the first guide to Juvenile Idiopathic Arthritis. Copyright Roche

What are the health needs and challenges?

Arthritis is a complex family of musculoskeletal disorders consisting of more than 100 different diseases or conditions that destroy joints, bones, muscles, cartilage and other connective tissues, hampering or halting physical movement.

Arthritis affects one in every 1,000 children and adolescents, and those affected have painful, stiff joints, which make it difficult for them to carry heavy items such as schoolbags. Juvenile idiopathic arthritis (JIA) is the most common form of arthritis in children, and differs significantly from arthritis commonly seen in adults (osteoarthritis, rheumatoid arthritis).

Although JIA is a chronic disease, access to appropriate treatment is vital so children can enjoy a normal life with reduced risk of future disability. In addition, there is a need for clear, accurate information about the disease, treatment and the key role played by both teachers and caregivers, to help support youngsters who suffer from JIA.

Description of partnership activities and how they address needs and challenges

To provide a general understanding of how a child relates to JIA, and deliver useful tools to help improve their daily lives, Roche developed and published a guide to JIA, in conjunction with physicians from Pedro Elizalde Hospital.

The first such guide to be published in Argentina, the material’s high visual and narrative impact helps to explain the illness and, thus, the quality of life of children suffering from it. The guide’s five easy-to-read chapters, and an appendix with games, provide ideas on how to explain the disease to a child and general information for parents, teachers and caregivers.

As part of the guide’s launch, Roche organises one event per year, where all play, teach and learn with JIA patients and their families while enjoying a unique experience that focuses on the beauty of being a child and enjoying life. Roche works hard to adapt the event activities to their needs and make sure they learn not only from doctors, but also from their friends. Roche offers parents the opportunity to share their experiences to show other JIA patients and their families that they are not alone and that leading a normal life just like everyone else is possible.

During the last four years, more than 2000 guides were distributed among Hospitals, Schools, Institutions and Families. Also, the event has gathered more than 800 people, including JIA patients and their families.

Videos

Ignacio, suffers from juvenile idiopathic arthritis

Partnership information

Company(ies) Roche

Partner(s) Pedro Elizalde Hospital

Type of Partner(s) Academia / Hospitals

Therapeutic Focus Women and Children's Health, Non-Communicable Diseases

Disease(s) Arthritis & Osteoperosis, Children's Health

Program Type(s) Prevention Programs - Awareness & Outreach

Targeted Population(s) Children, Health professionals, Patients in needs of treatment

Region(s) Latin America & Caribbean

Number of Countries 1

Country(ies) Argentina

Start Date 2012

More information Roche Increasing Access to Healthcare

Completed date 2015